Getting support to adapt your home or live where you choose

Examples of Support

Appropriate housing options

Housing adaptations  (e.g. wet floor shower room, extensions)

Specialist assessment and equipment (e.g. handrails, temperature sensing equipment, remote door openers)

Advice about local authority grants

Advice about falls prevention

Advice about planning for the future (e.g. needing a carer to stay overnight, adapting a house for a wheelchair)

Being part of the community and having access to outside spaces

Advice about mortgages and housing benefit or Council Tax

Financial planning

Key Services and People

HD Specialists

Housing Officer

Health & Social Care Services (e.g. Community Occupational Therapist)

Homeless Services (e.g. Shelter , Crisis , Bethany Christian Trust , Emmaus , Centrepoint , Salvation Army)

Telehealth & Telecare

Assistive Technology

Safety and monitoring systems

Integrated Multi Agency Arrangements, Referral Pathways and Resources

HD Specialists to consider housing needs and refer client to relevant services for formal assessment of housing needs and options.

There should be a nominated Housing Officer – or local area coordination group – in each area with whom the HD Specialists can liaise to highlight clients with complex needs or who are facing difficulties resolving their housing problems.

Standards

Refer to local Scottish Huntington’s Association service standards

Outcomes

People living with HD and their families feel well informed about and empowered to access available housing options, are able to live independently for longer and with a good quality of life.

National Care Framework for Huntington's Disease