Participation in research

Examples of Support

Getting information about clinical trials & other research

Integrated Multi Agency Arrangements, Referral Pathways and Resources

Refer to HD Specialists for local knowledge and direction to appropriate research clinic

NHS Research Scotland – Dementia & Neurodegenerative Disease

Standards

All work should be done in line with ICH Good Clinical Practice Guidelines

Clinical research opportunities should be available in every health board area.

Outcomes

More people with HD and their families are given the opportunity to participate in clinical trials, where appropriate.

National Care Framework for Huntington's Disease