Deciding whether to have the genetic test
Examples of Support
Finding out about and telling others about HD
Living with genetic risk and testing
Getting information when required (e.g. on family life with HD, emotional wellbeing & coping skills, condition information and access to services)
Advice to help decide whether genetic testing is right for you
Key Services and People
Integrated Multi Agency Arrangements, Referral Pathways and Resources
The International Protocol for Testing should be followed unless a clinical decision has been made to follow a local alternative.
All appointments should meet the treatment time guarantee and referral standards of individual services used.
Whoever is designated as lead professional should take responsibility for coordinating the support each client requires throughout their testing journey.
People living with the genetic risk of HD and their families have easy access to accurate and understandable information, receive emotional and practical support and feel supported through all testing choices and outcomes.