Getting information and advice about HD and someone to support you
Examples of Support
Signposting to trusted sources and provision of information and support ( e.g. career planning, employment issues, carer support, finances, welfare rights, insurance, planning ahead, power of attorney, living wills, wills and testaments, keeping healthy, research, condition specific information, driving, housing )
Key Services and People
Clinical psychology / neuropsychology (access via HD Specialists )
Mental Health Services ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , North West Glasgow: 0141 531 6700, North East Glasgow: 0141 232 7290, South Glasgow: 0141 232 2555 )
Carer Support Services ( e.g. Inverclyde, East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City , Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland, Scottish Huntington’s Association Carers’ Forum, Volunteer Glasgow )
Integrated Multi Agency Arrangements, Referral Pathways and Resources
All clients should be provided with a referral pack appropriate to their needs, including a service leaflet detailing available specialist support.
All clients with a new diagnosis of HD should be directed to the HD Road Map
Information Services should clearly identify HD team as main point of contact for information and advice about HD.
There are clear referral processes with Health & Social Care Partnerships ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City ) to provide assessment and care management
People living with HD and their families are provided with timely and accurate information about their condition and the choices, services and support available to them.