Support with employability when you need it

Examples of Support
Formal advice (advocacy, facilitation, mediation & legal) relating to: employment options, information on HD for employers, employment law and employment rights, changes to working patterns, workplace adaptations and equipment.
Key Services and People

HD Specialists

Scottish Huntington’s Association Financial Wellbeing Service ( offering advice on money issues surrounding employment and link to employment advice services ). Alternative employment advice services are provided by DG Employment TAP , Citizens’ Advice and ACAS .

Scottish Huntington’s Association Youth Project (SHAYP) / Specialist Youth Advisors

Employment Lawyer (contact Citizen’s Advice or Scottish Huntington’s Association for initial assistance)

Occupational Health

HD Management Clinic

Trades Unions

Advocacy services ( e.g. Dumfries & Galloway Advocacy Service, Barnardo’s, Who Cares Scotland? )

Disability Employment Service

Job Centre Plus Work Coach

Working Health Services Scotland

Fit for Work Scotland

Occupational Therapy (Vocational Rehabilitation)

DVLA

Disability Discrimination Act

Staff Associations

Integrated Multi Agency Arrangements, Referral Pathways and Resources
Referral to HD Specialist who will assess support required, either providing direct advice to client and/or employer, or referring to/ coordinating one or more of the key services identified for specialist advice

For under 25 year olds, refer to Specialist Youth Advisors who will assess support required before referring on to one or more of the key services identified for specialist advice and vocational rehabilitation

Standards
Referral Standards of service used
Outcomes
People with symptoms of HD and their families or carers are able to work in line with their abilities and choices, have good access to advice about employment rights and are well connected to employment support services.
National Care Framework for Huntington's Disease

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