Getting support to adapt your home or live where you choose

Appropriate housing options

Housing adaptations  ( e.g. wet floor shower room, extensions )

Specialist assessment and equipment ( e.g. handrails, temperature sensing equipment, remote door openers )

Advice about local authority grants

Advice about falls prevention

Advice about planning for the future ( e.g. needing a carer to stay overnight, adapting a house for a wheelchair )

Being part of the community and having access to outside spaces

Advice about mortgages and housing benefit or Council Tax

Financial planning

Lothian HD Service ( HD Clinical Lead , HD Specialists , Specialist Youth Advisor , Financial Wellbeing Officer )

Housing Departments ( Edinburgh City , Midlothian , East Lothian , West Lothian )

Health & Social Care Services ( NHS Lothian, Edinburgh City HSCP , Midlothian HSCP , East Lothian HSCP , West Lothian HSCP )

Community Occupational Therapy  ( also see Edinburgh City , Midlothian, East Lothian , West Lothian )

Homeless Services ( Edinburgh City , Midlothian , East Lothian , West Lothian , Shelter , Crisis , Bethany Christian Trust , Emmaus , Centrepoint , Salvation Army )

Telehealth & Telecare

Assistive Technology

Wheelchair & seating services

Safety and monitoring systems ( Edinburgh City ,  East Lothian ,  West Lothian , Midlothian )

Falls Prevention & Management

HD Specialists to consider housing needs and refer client to relevant services for formal assessment of housing needs and options.

There should be a nominated Housing Officer – or local area coordination group – in each area with whom the HD Specialists can liaise to highlight clients with complex needs or who are facing difficulties resolving their housing problems.

Refer to local Scottish Huntington’s Association service standards

People living with HD and their families feel well informed about and empowered to access available housing options, are able to live independently for longer and with a good quality of life.