Deciding whether to have the genetic test
Examples of Support
Living with genetic risk and testing
Getting information when required (e.g. on family life with HD, emotional wellbeing & coping skills, condition information and access to services)
Advice to help decide whether genetic testing is right for you
Predictive testing
Diagnostic testing
Key Services and People
Clinical Genetics
Clinical psychology/neuropsychology
HD Clinics
Scottish Huntington’s Association Youth Project (SHAYP)/Specialist Youth Advisors
Integrated Multi Agency Arrangements, Referral Pathways and Resources
Standards
The International Protocol for Testing should be followed unless a clinical decision has been made to follow a local alternative.
All appointments should meet the treatment time guarantee and referral standards of individual services used.
Whoever is designated as lead professional should take responsibility for coordinating the support each client requires throughout their testing journey.
Outcomes