Support if you are a caregiver and getting a break from caring

Examples of Support

Carers rights
Carers assessment
Carers training
Young carers
Employment issues
Finances
Welfare rights
Insurance
Planning ahead
Power of Attorney
Respite
Wills & testaments
Keeping healthy
Condition specific information
Housing
Emotional support & reducing isolation
Financial planning
Support for mental health & wellbeing
Anticipatory Care Planning
Faith based organisations (see Fife Interfaith Group, Interfaith Scotland – Fife)

Key Services and People

HD Specialists

Scottish Huntington’s Association Youth Project (SHAYP)/Specialist Youth Advisors

Carer Support Services (e.g. Carers Trust, Carers Scotland, Shared Care Scotland, Care Information Scotland, Fife Carers’ Centre and Homelands Fife)

Health & Social Care Services

HD Support Groups

Young Carer’s Services (e.g. Fife Young Carers, Young Carers (Fife Direct), Penumbra Fife, Barnardo’s Fife)

Mental Health Services (e.g. Community Mental Health Team, GP, Clinical psychology/neuropsychology, psychiatry).

Scottish Huntington’s Association Carers’ Forum

Hospice/Palliative Care Services

Integrated Multi Agency Arrangements, Referral Pathways and Resources

HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social Work for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.

Standards

Support should be consistent with the Carers (Scotland) Act 2016 (commencing 1 April 2018)

HSCPs should ensure that training & education is available to carers

Outcomes