Getting information and advice about HD and someone to support you
Examples of Support
Key Services and People
Clinical Genetics
Speech & Language Therapy
Dietetics
Physiotherapy
Occupational Therapy ( 03451 55 15 03 or sw.contactctr@fife.gov.uk )
Clinical psychology/neuropsychology
Scottish Huntington’s Association
Scottish Huntington’s Association Youth Project (SHAYP)/Specialist Youth Advisors
Podiatry, Footcare Fife
Mental Health Services
Integrated Multi Agency Arrangements, Referral Pathways and Resources
Open referral to HD Specialists or Specialist Youth Advisors
All clients should be provided with a referral pack appropriate to their needs, including a service leaflet detailing available specialist support
All clients with a new diagnosis of HD should be directed to the HD Road Map
G.P. information services, such as SCI Gateway and/or local alternative, should clearly identify HD Specialists as main point of contact for information and advice about HD.
There are clear referral routes with Social Work to provide assessment and care management. Clients are initially referred to central contact centre (03451 551 503) before being passed to appropriate team and allocated a social worker.
Standards
Every client should have a named HD Specialist
Referral to individual service standards
Outcomes