Moving to supported accommodation and long term care
Examples of Support
Managing transitions
Financial planning
Respite prior to move to long term care
Ensuring care staff have sufficient info and training on HD
Access to specialist equipment in long term care
Ensuring specific nutritional needs can be met
Supporting staff to understand changes in behaviour
Key Services and People
Scottish Huntington’s Association Youth Project (SHAYP)/Specialist Youth Advisors
Advocacy
Occupational Therapy ( 03451 55 15 03 or sw.contactctr@fife.gov.uk )
Community Physiotherapy
Clinical psychology/neuropsychology
Scottish Huntington’s Association Financial Wellbeing Service
Faith based organisations (see Fife Interfaith Group, Interfaith Scotland – Fife, Chaplaincy Services)
Integrated Multi Agency Arrangements, Referral Pathways and Resources
A number of supported accommodation and care home providers are identified and commissioned to provide specialist care for people with symptoms of HD. There are clear arrangements for multi-disciplinary care and care provided in line with National Nursing Home Contract .
There are clear liaison arrangements, training, support and capacity building with the specialist core team. HD Specialists regularly visit care homes with HD clients.
Nursing homes must liaise regularly with their named HD Specialist where there are changes or new concerns about the person with HD.
Checklist to be provided to enable clients to choose the best provider for their needs.
Families supported by HD Specialist or Care Manager to view care homes to inform their decisions.
Standards
Care is consistent with the Health & Social Care Standards for Scotland
Every person living in a care home receives regular reviews, with an annual review by a local specialist team as a minimum to ensure health & social care requirements are being met.
HD Specialist or specialist team to be advised when there are any changes to care requirements.
In a long term care setting all aspects of care should comply with the HD Framework.