Support if you are a caregiver and getting a break from caring

Examples of Support

Carers rights

Carers assessment

Carers training

Young carers

Employment issues


Welfare rights


Planning ahead

Power of Attorney


Wills & testaments

Keeping healthy

Condition specific information


Emotional support & reducing isolation

Financial planning

Support for mental health & wellbeing

Key Services and People

HD Specialists

Scottish Huntington’s Association Youth Project (SHAYP) / Specialist Youth Advisors

Carer Support Services (e.g. Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland)

Health & Community Care Services

HD Support Groups

Young Carer’s Services

Mental Health Services (e.g. Community Mental Health Team, GP, psychology/ neuropsychology, psychiatry).

Integrated Multi Agency Arrangements, Referral Pathways and Resources

HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social Work for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.


Support should be consistent with the Carers (Scotland) Act 2016  (commencing 1 April 2018)

HSCPs should ensure that training & education is available to carers


Carers and their families are well connected  to support services and feel adequately supported throughout their experience

National Care Framework for Huntington's Disease