Support with employability when you need it

Examples of Support

Formal advice (advocacy, facilitation, mediation & legal) relating to: employment options, information on HD for employers, employment law and employment rights, changes to working patterns, workplace adaptations and equipment.

Key Services and People

HD Specialists

Scottish Huntington’s Association Financial Wellbeing Service .  Alternative services are provided by Citizens’ Advice, Macmillan, Money Advice Trust and Information Officers at local authorities, where available.

Scottish Huntington’s Association Youth Project (SHAYP) / Specialist Youth Advisors

Employment Lawyer (contact Citizen’s Advice or Scottish Huntington’s Association for initial assistance)

Occupational health (where available)

HD clinics

Trades Unions

Staff Associations

Independent Advocacy

Disability Employment Service

Job Centre Plus Work Coach

Working Health Services Scotland

Fit for Work Scotland

Occupational Therapy (Vocational Rehabilitation)

Integrated Multi Agency Arrangements, Referral Pathways and Resources

Referral to HD Specialist who will assess support required, either providing direct advice to client and/or employer, or referring to/ coordinating one or more of the key services identified for specialist advice

For under 25 year olds, refer to Specialist Youth Advisors who will assess support required before referring on to one or more of the key services identified for specialist advice and vocational rehabilitation


Referral Standards of service used


People with symptoms of HD and their families or carers are able to work in line with their abilities and choices, have good access to advice about employment rights and are well connected to employment support services.

National Care Framework for Huntington's Disease