Support if you are a caregiver and getting a break from caring

Examples of Support
Carers rights

Carers assessment

Carers training

Young carers

Employment issues

Finances

Welfare rights

Insurance

Planning ahead

Power of Attorney

Respite

Wills & testaments

Keeping healthy

Condition specific information

Housing

Emotional support & reducing isolation

Financial planning

Support for mental health & wellbeing

Anticipatory Care Planning

Key Services and People

HD Specialists

Scottish Huntington’s Association Youth Service / Specialist Youth Advisors

Carer Support Services (e.g. Dumfries & Galloway Carers’ Centre, Carers Trust, Carer’s Scotland, Shared Care Scotland, Care Information Scotland)

Health & Social Care Services

HD Support Groups

Young Carers’ Project

Mental Health Services (e.g. Community Mental Health Team, GP, Clinical Psychology / Neuropsychology, psychiatry).

Scottish Huntington’s Association Carers’ Forum

Faith based organisations (see Spiritual Care Support or Dumfries & Galloway Interfaith Forum )

Hospice/ Palliative Care Service (see Dumfries & Galloway HSCP Palliative Care or Scottish Partnership for Palliative Care )

Integrated Multi Agency Arrangements, Referral Pathways and Resources
HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social Work for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.
Standards
Support should be consistent with the Carers (Scotland) Act 2016  (commencing 1 April 2018)

HSCPs should ensure that training & education is available to carers

Outcomes
Carers and their families are well connected  to support services and feel adequately supported throughout their experience
National Care Framework for Huntington's Disease

fife_menu