Support if you are a caregiver and getting a break from caring

Examples of Support
Carers rights

Carers assessment

Carers training

Young carers

Employment issues

Finances

Welfare rights

Insurance

Planning ahead

Power of Attorney

Respite

Wills & testaments

Keeping healthy

Condition specific information

Housing

Financial planning

Support for mental health & wellbeing

Key Services and People

HD Specialist Service  ( HD SpecialistHD Clinical Lead, Specialist Youth Advisors, Financial Wellbeing Officer )

Carer Support Services, including respite ( Angus Carers’ Centre , Dundee Carers Centre , Perth & Kinross Carers , Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland )

Health & Social Care Services ( Angus , Dundee City , Perth & Kinross )

HD Support Groups

Young carer & young adult carers’ services ( Angus Young Carers, Dundee Young Carers’ Project , PKAVE Young Carers’ Hub , Children First , Carers Trust , Home Start )

Mental Health Services e.g. GP, Psychology Services, Psychiatry , Community Mental Health Services ( Angus, Dundee City , Dundee East , Dundee West , Perth & Kinross )

Scottish Huntington’s Association Carers’ Forum

Spiritual Care & Wellbeing

Palliative Care Services/ Hospices

Scottish Huntington’s Association Short Breaks Fund (via HD Specialists )

Cruse Bereavement Care

Integrated Multi Agency Arrangements, Referral Pathways and Resources
HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social Work ( Angus , Dundee City , Perth & Kinross ) for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.
Standards
Support should be consistent with the Carers (Scotland) Act 2016

Health & Social Care Partnerships (HSCPs) should ensure that training & education is available to carers

Outcomes
Carers and their families are well connected  to support services and feel adequately supported throughout their experience
National Care Framework for Huntington's Disease

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