Support to plan for the future

Making Advanced Directives

Anticipatory Care Plans

Wills

Guardianship

Power of Attorney (Putting in place legal measures to help plan for the future)

Funeral planning

Cultural considerations

Choosing care placement

Organ Donation & Brain Donation

Childcare

Financial planning

HD Specialist Service  ( HD Specialist, HD Clinical Lead, Specialist Youth Advisors, Financial Wellbeing Officer )

Rehabilitation Services

Neuropsychology

GP

Health & Social Care Services ( Angus , Dundee City , Perth & Kinross )  esp. Allied Health Professionals e.g. Speech & Language Therapy,  Physiotherapy , Occupational Therapy , Nutrition & Dietetics

Carer Support Services, including respite ( Angus Carers’ Centre , Dundee Carers Centre , Perth & Kinross Carers , Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland )

Office of Public Guardian

Mental Welfare Commission

Legal Services (contact Citizens Advice , Scottish Huntington’s Association or Law Society of Scotland for initial for assistance)

Advocacy

HD Family & Friends (HD Support Groups)

Psychiatry

Mental Health Services/ Mental Health Officers ( Angus, Dundee City , Dundee East , Dundee West , Perth & Kinross )

Palliative Care Services/ Hospices

HD Specialists will support clients who wish to discuss and document future planning wishes. Clients will be made aware of their options regarding legal frameworks, advance statements, values history statements.

Where appropriate every symptomatic client should be offered a discussion about having an anticipatory care plan, with one being put in place based on individual need. HD Specialists will refer and liaise with the client’s GP

With consent of client a GP should complete a Key Information Summary (KIS) entry.

Individual future plans should be revisited as part of an annual review of care and support.

Advice and support is consistent with Royal College of Nursing and General Medical Guidance on conducting future care conversations and in line with Mental Health (Care & Treatment) (Scotland) Act 2003

Also see Standards of service used (e.g. Office of Public Guardian, Palliative Care Standards, H&SC Standards, Scot Gov/ SIGN standards)

People living with HD and their families feel empowered and are more confident that appropriate plans are in place to ensure their future wishes are respected and that their future care needs have been anticipated.