Support if you are a caregiver and getting a break from caring

Carers rights

Carers assessment

Carers training

Young carers

Employment issues

Finances

Welfare rights

Insurance

Planning ahead

Power of Attorney

Respite

Wills & testaments

Keeping healthy

Condition specific information

Housing

Emotional support & reducing isolation

Financial planning

Support for mental health & wellbeing

Anticipatory Care Planning

HD Specialists

Scottish Huntington’s Association Youth Service / Specialist Youth Advisors

Carer Support Services (e.g. Care & Support North Ayrshire/North Ayrshire Council (Carers), South Ayrshire Council (Carers), South Ayrshire Carers Centre, Crossroads, East Ayrshire Carers Centre, Carers Trust, Carer’s Scotland, Shared Care Scotland, Care Information Scotland)

Health & Community Care Services (North Ayrshire HSCP, South Ayrshire HSCP, East Ayrshire HSCP)

HD Support Groups

Young carers services (North Ayrshire, South Ayrshire, East Ayrshire)

Mental Health Services (e.g. Community Mental Health Team, GP, clinical psychology/neuropsychology, psychiatry).

Scottish Huntington’s Association Carers’ Forum

Faith based organisations (see Chaplaincy Services or Ayrshire Interfaith Forum)

Hospice/Palliative Care Services

HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social Work for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.

Support should be consistent with the Carers (Scotland) Act 2016  (commencing 1 April 2018)

HSCPs should ensure that training & education is available to carers

Carers and their families are well connected  to support services and feel adequately supported throughout their experience