Finding out if you have symptoms of HD
Examples of Support
Diagnostic testing
Neurological Assessment
Emotional support and counselling
Accurate information about HD
Post-test follow up and referral on to other support services
Process and timescale for testing
Key Services and People
Speech & Language Therapy (Aberdeen City & Aberdeenshire, Moray)
Dietetics (01224 557318)
Occupation Therapy (Aberdeen City, Aberdeenshire, Moray)
Clinical psychology/neuropsychology (through referral from GP or HD Clinical Lead)
Scottish Huntington’s Association Youth Project (SHAYP)/Specialist Youth Advisors/Scottish Huntington’s Association
Advocacy (Aberdeen City, Aberdeenshire, Moray)
Mental Health Services (through referral from GP or HD Clinical Lead)
Social Work (Aberdeen City, Aberdeenshire, Moray)
Integrated Multi Agency Arrangements, Referral Pathways and Resources
Open referral to HD Specialists or Specialist Youth Advisors
All clients should be provided with a referral pack appropriate to their needs, including a service leaflet detailing available specialist support
All clients with a new diagnosis of HD should be directed to the HD Road Map
G.P. information services, such as SCI Gateway/TRAKCare, should clearly identify HD Specialists as main point of contact for information and advice about HD.
There are clear links with social work to provide assessment and care management
Standards
A summary letter should be provided to GP and client within one month of completion of assessment
Every client should have a named HD Specialist
Referral to individual service standards
Outcomes
People living with HD and their families are provided with timely and accurate information about their condition and the choices, services and support available to them.