Finding out if you have symptoms of HD

Diagnostic testing

Neurological Assessment

Emotional support and counselling

Accurate information about HD

Post-test follow up and referral on to other support services

Process and timescale for testing

HD Specialists

HD Clinical Lead

Clinical Genetics

Speech & Language Therapy (Aberdeen City & Aberdeenshire, Moray)

Dietetics (01224 557318)

Physiotherapy

Occupation Therapy (Aberdeen City, Aberdeenshire, Moray)

Clinical psychology/neuropsychology (through referral from GP or HD Clinical Lead)

Scottish Huntington’s Association Youth Service / Specialist Youth Advisors / Scottish Huntington’s Association

Advocacy  (Aberdeen City, Aberdeenshire, Moray)

Podiatry

Mental Health Services (through referral from GP or HD Clinical Lead)

Social Work (Aberdeen City, Aberdeenshire, Moray)

NHS Choices

HD Buzz

Health Literacy Place

Dental Services

GPs

Wheelchair & specialist seating services

Independent Living Centre (Moray)

Open referral to HD Specialists or Specialist Youth Advisors

All clients should be provided with a referral pack appropriate to their needs, including a service leaflet detailing available specialist support

All clients with a new diagnosis of HD should be directed to the HD Road Map

G.P. information services, such as SCI Gateway/TRAKCare, should clearly identify HD Specialists as main point of contact for information and advice about HD.

There are clear links with social work to provide assessment and care management

A summary letter should be provided to GP and client within one month of completion of assessment

Every client should have a named HD Specialist

Referral to individual service standards

People living with HD and their families are provided with timely and accurate information about their condition and the choices, services and support available to them.