Support with employability when you need it

Examples of Support

Formal advice ( advocacy, facilitation, mediation & legal ) relating to: employment options, information on HD for employers, employment law and employment rights, changes to working patterns, workplace adaptations and equipment.

Key Services and People

Lothian HD Service ( HD Clinical Lead , HD Specialists , Specialist Youth Advisor , Financial Wellbeing Officer )

Scottish Huntington’s Association Financial Wellbeing Service ( offering advice on money issues surrounding employment and link to employment advice services ). Alternative employment advice services are provided by Citizens’ Advice and ACAS .

Local employability service ( NHS Lothian , Edinburgh City , Midlothian , East Lothian , West Lothian )

Employment Lawyer ( contact Citizen’s Advice or Scottish Huntington’s Association for initial assistance )


Trades Unions


Disability Employment Service

Job Centre Plus Work Coach

Job Retention Services ( Lothian Work Support Services , Healthy Working Lives Scotland )

Occupational Therapy  ( also see Edinburgh CityMidlothian, East Lothian , West Lothian )



Volunteer Scotland

Occupational Health

Staff Associations

Integrated Multi Agency Arrangements, Referral Pathways and Resources

Referral to HD Specialist who will assess support required, either providing direct advice to client and/or employer, or referring to/ coordinating one or more of the key services identified for specialist advice

For under 25 year olds, refer to Specialist Youth Advisors who will assess support required before referring on to one or more of the key services identified for specialist advice and vocational rehabilitation


Referral Standards of service used


People with symptoms of HD and their families or carers are able to work in line with their abilities and choices, have good access to advice about employment rights and are well connected to employment support services.

National Care Framework for Huntington's Disease