Getting information and advice about HD and someone to support you

Signposting to trusted sources and provision of information and support ( e.g. career planning, employment issues, carer support, finances, welfare rights, insurance, planning ahead, power of attorney, living wills, wills and testaments, keeping healthy, research, condition specific information, driving, housing )

HD Clinic ( HD Clinical Lead, HD Specialists, Specialist Youth Advisor, Financial Wellbeing Officer )

Clinical Genetics

Speech & Language Therapy / Augmentative & Alternative Communication

Dietetics

Physiotherapy

Occupational Therapy ( North Lanarkshire  ,  South Lanarkshire )

Neuropsychology ( 01236 712 564 )

Scottish Huntington’s Association Advocacy ( North Lanarkshire ,  South Lanarkshire )

Podiatry

Mental Health Support

Psychiatry

Social work  ( North Lanarkshire , South Lanarkshire )

NHS Choices / NHS Inform

HD Buzz

Health Literacy Place

Dental Services

Holistic Therapies ( The Haven, Hospices )

Open referral to HD Specialists or Specialist Youth Advisors

All clients should be provided with a referral pack appropriate to their needs, including a Service Leaflet detailing specialist support

All clients with a new diagnosis of HD should be directed to the HD Road Map

SCI Gateway should clearly identify HD Specialists as main point of contact for information and advice about HD.

There are clear links with social work  ( North Lanarkshire ,  South Lanarkshire ) to provide assessment and care management

A summary letter should be provided to GP and client within one month of completion of assessment

Every client should have a named HD Specialist

Referral to individual service standards

People living with HD and their families are provided with timely and accurate information about their condition and the choices, services and support available to them.