Moving to supported accommodation and long term care
Examples of Support
Help with choosing a care home
Respite prior to move to long term care
Ensuring care staff have sufficient info and training on HD
Access to specialist equipment in long term care
Supporting staff to understand changes in behaviour
Key Services and People
HD Clinic ( HD Clinical Lead, HD Specialists, Specialist Youth Advisor, Financial Wellbeing Officer )
Neuropsychology ( 01236 712 564 )
Power of Attorney/Welfare Guardian
Integrated Multi Agency Arrangements, Referral Pathways and Resources
The multi-disciplinary team will support each individual and their family to plan for their long term care needs. This may include support to live at home, supported housing or long term nursing home care.
There is a local commissioning plan which identifies a range of resources to meet the individual needs of people with HD.
A number of supported accommodation and care home providers are identified and commissioned to provide specialist care for people with symptoms of HD. There are clear arrangements for multi-disciplinary care and care provided in line with National Nursing Home Contract .
There are clear liaison arrangements, training, support and capacity building with the specialist core team.
Nursing homes must liaise regularly with their named HD Specialist where there are changes or new concerns about the person with HD.
Checklist to be provided to enable clients to choose the best provider for their needs.
Families supported by HD Specialist or Care Manager to view care homes to inform their decisions.
Care is consistent with the Health & Social Care Standards for Scotland
Every person living in a care home receives regular reviews, with an annual review by a local specialist team as a minimum to ensure health & social care requirements are being met.
HD Specialist or specialist team to be advised when there are any changes to care requirements.
In a long term care setting all aspects of care should comply with the HD Framework.
People living with HD and their families have a positive experience of long term care and are satisfied with their quality of life.