Support if you are a caregiver and getting a break from caring

Examples of Support
Carers rights

Carers assessment

Carers training

Young carers

Employment issues

Finances

Welfare rights

Insurance

Planning ahead

Power of Attorney

Respite

Wills & testaments

Keeping healthy

Condition specific information

Housing

Emotional support & reducing isolation

Financial planning

Support for mental health & wellbeing

Key Services and People

HD Clinic ( HD Clinical Lead, HD Specialists, Specialist Youth Advisor, Financial Wellbeing Officer )

Carer Support Services ( e.g. Lanarkshire Carers Centre , Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland )

Health & Community Care Services ( North Lanarkshire , South Lanarkshire )

HD Support Groups

Young Carers’ Services ( North Lanarkshire , South Lanarkshire )

Mental Health Support

Psychiatry

GP

Clinical psychology

Scottish Huntington’s Association Carers’ Forum

Faith based organisations ( see  Chaplaincy Services or  Interfaith Forum )

Hospice/ Palliative Care Services ( Also see: St Andrew’s Hospice , Strathcarron Hospice , Kilbryde Hospice , The Haven )

Care & Repair ( North Lanarkshire , South Lanarkshire )

Integrated Multi Agency Arrangements, Referral Pathways and Resources
HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social work  ( North Lanarkshire , South Lanarkshire ) for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.
Standards
Support should be consistent with the Carers ( Scotland ) Act 2016

HSCPs should ensure that training & education is available to carers

Outcomes
Carers and their families are well connected  to support services and feel adequately supported throughout their experience
National Care Framework for Huntington's Disease

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