Getting information and advice about HD and someone to support you

Signposting to trusted sources and provision of information and support ( e.g. career planning, employment issues, carer support, finances, welfare rights, insurance, planning ahead, power of attorney, living wills, wills and testaments, keeping healthy, research, condition specific information, driving, housing )

HD Service ( HD Clinical Lead , HD Specialists, Specialist Youth Advisor, Financial Wellbeing Officer )

Clinical Genetics

Speech & Language Therapy (also see Inverclyde , West Dunbartonshire & Renfrewshire )

Dietetics

Physiotherapy / MSK Physiotherapy

Occupational Therapy (also see East Dunbartonshire , Inverclyde , Renfrewshire )

Clinical psychology / neuropsychology (access via HD Specialists )

Advocacy ( Inverclyde , East Renfrewshire, West Dunbartonshire , East Dunbartonshire , Renfrewshire , Glasgow City , Scottish Independence Advocacy Alliance )

Podiatry

Mental Health Services  ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , North West Glasgow: 0141 531 6700, North East Glasgow: 0141 232 7290, South Glasgow: 0141 232 2555 )

Health & Social Care Partnerships ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City )

NHS Inform or NHS Choices

HD Buzz

HeaDline

Health Literacy Place

Dental Services

Carer Support Services ( e.g. Inverclyde,  East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City , Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland, Scottish Huntington’s Association Carers’ Forum, Volunteer Glasgow )

HD Support Groups

Open referral to HD Specialists or Specialist Youth Advisors

All clients should be provided with a referral pack appropriate to their needs, including a service leaflet detailing available specialist support.

All clients with a new diagnosis of HD should be directed to the HD Road Map

Information Services should clearly identify HD team as main point of contact for information and advice about HD.

There are clear referral processes with  Health & Social Care Partnerships  ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City ) to provide assessment and care management

Every client should have a named HD Specialist . A summary letter should be provided to GP and client within one month of completion of assessment

Referral to individual service standards

People living with HD and their families are provided with timely and accurate information about their condition and the choices, services and support available to them.