Support if you are a caregiver and getting a break from caring

Examples of Support
Carers rights

Carers assessment

Carers training

Young carers

Employment issues

Finances

Welfare rights

Insurance

Planning ahead

Power of Attorney

Respite

Wills & testaments

Keeping healthy

Condition specific information

Housing

Emotional support & reducing isolation

Financial planning

Support for mental health & wellbeing

Key Services and People

HD Service ( HD Clinical Lead , HD Specialists, Specialist Youth Advisor, Financial Wellbeing Officer )

Carer Support Services (e.g. Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City , Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland)

Health & Community Care Services ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire, Renfrewshire, Glasgow City )

HD Support Groups

Services for young carers ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City )

Mental Health Services e.g., GP, Clinical psychology / neuropsychology, psychiatry, Community Mental Health Team ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , North West Glasgow: 0141 531 6700, North East Glasgow: 0141 232 7290, South Glasgow: 0141 232 2555 )

Scottish Huntington’s Association Carers’ Forum

Faith based organisations (see Chaplaincy Services or  Interfaith Forum )

Hospice/ Palliative Care Services

Integrated Multi Agency Arrangements, Referral Pathways and Resources
HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social Work ( Inverclyde , East Dunbartonshire , West Dunbartonshire , East Renfrewshire , Renfrewshire , Glasgow City ) for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.
Standards
Support should be consistent with the Carers ( Scotland ) Act 2016

HSCPs should ensure that training & education is available to carers

Outcomes
Carers and their families are well connected  to support services and feel adequately supported throughout their experience
National Care Framework for Huntington's Disease

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