Moving to supported accommodation and long term care

Examples of Support

Help with choosing a care home

Managing transitions

Financial planning

Respite prior to move to long term care

Ensuring care staff have sufficient info and training on HD

Access to specialist equipment in long term care

Ensuring specific nutritional needs can be met

Integrated Multi Agency Arrangements, Referral Pathways and Resources

A number of supported accommodation and care home providers can provide specialist care for people with symptoms of HD. There are clear arrangements for multi-disciplinary care and care provided in line with National Nursing Home Contract .

There are clear liaison arrangements, with the HD specialist team including training, support and capacity building

Nursing homes should liaise regularly with their named HD Specialist where there are relevant changes or new concerns about the person with HD.

Checklist to be provided to enable clients to choose the best provider for their needs.

Families supported by HD Specialist or Care Manager to view care homes to inform their decisions.


Care is consistent with the Health & Social Care Standards

Every person living in a care home receives regular reviews, with an annual review by a local specialist team as a minimum to ensure health & social care requirements are being met.

HD Specialist or specialist team to be advised when there are any changes to care requirements.

In a long term care setting all aspects of care should comply with the HD Framework.


People living with HD and their families have a positive experience of long term care and are satisfied with their quality of life.

National Care Framework for Huntington's Disease