Participation in research
Examples of Support
Getting information about clinical trials & other research
Key Services and People
HD Service ( HD Clinical Lead , HD Specialists, Specialist Youth Advisor, Financial Wellbeing Officer )
Glasgow Clinical Research Facility
NHS Research Scotland – Dementia & Neurodegenerative Disease
European Huntington’s Disease Network
European Huntington’s Association
Research & Development Department
Integrated Multi Agency Arrangements, Referral Pathways and Resources
Refer to HD Specialists & HD Clinical Lead for local knowledge and direction to appropriate research clinic
Standards
All work should be done in line with ICH Good Clinical Practice Guidelines
Clinical research opportunities should be available in every health board area.
Outcomes
More people with HD and their families are given the opportunity to participate in clinical trials, where appropriate.