Getting information and advice about HD and someone to support you

Signposting to trusted sources and provision of information and support (e.g. career planning, employment issues, carer support, finances, welfare rights, insurance, planning ahead, power of attorney, living wills, wills and testaments, keeping healthy, research, condition specific information, driving, housing)

HD Specialists

HD Clinical Lead

Clinical Genetics

Scottish Huntington’s Association Financial Wellbeing Service

Scottish Huntington’s Association Youth Project (SHAYP) / Specialist Youth Advisors  / Scottish Huntington’s Association

Advocacy Services ( Highland, Argyll & Bute )

Clinical psychology/Neuropsychology (through referral from GP or HD Clinical Lead )

Dental Services

Dietetics ( Highland, Argyll & Bute )

GPs

HD Buzz

Health Literacy Place

Mental Health Services (through referral from GP or HD Clinical Lead )

NHS Inform

Occupational Therapy ( Highland, Argyll & Bute )

Physiotherapy

Podiatry

Social Work ( Highland, Argyll & Bute )

Speech & Language Therapy

Wheelchair & Specialist Seating Services ( Highland,  Argyll & Bute )

Any staff or family member may refer to HD Specialists or Specialist Youth Advisors

All clients should be provided with a referral pack appropriate to their needs, including a service leaflet detailing available specialist support.

All clients with a new diagnosis of HD should be directed to the HD Road Map

G.P. information services, such as SCI Gateway / TRAKCare, should clearly identify HD Specialists as main point of contact for information and advice about HD.

There are clear links with social work to provide assessment and care management

A summary letter should be provided to GP and client within one month of completion of assessment

Every client should have a named HD Specialist

Referral to individual service standards

People living with HD and their families are provided with timely and accurate information about their condition and the choices, services and support available to them.