Support if you are a caregiver and getting a break from caring

Examples of Support
Carers rights

Carers assessment

Carers training

Young carers

Employment issues

Finances

Welfare rights

Insurance

Planning ahead

Power of Attorney

Respite (including for carers)

Wills & testaments

Keeping healthy

Condition specific information

Housing

Emotional support & reducing isolation

Financial planning

Support for mental health & wellbeing

Anticipatory Care Planning

Key Services and People

HD Specialists

Scottish Huntington’s Association Youth Service / Specialist Youth Advisors

Scottish Huntington’s Association Financial Wellbeing Service

Carer Support Services (e.g. NHS Highland , Highland Council , Argyll & Bute Council , Connecting Carers , Highland Carers Advocacy , Carers Trust , Carers Scotland , Shared Care Scotland , Care Information Scotland  )

Social Work (Care Management) ( Highland , Argyll & Bute )

HD Support Groups

Young carers’ services ( Highland, Argyll & Bute )

Mental Health Services e.g. GP, clinical psychology/neuropsychology, Psychiatry, Community Mental Health Team ( Highland, Argyll & Bute )

Hospice Services

Scottish Huntington’s Association Short Breaks Fund

Integrated Multi Agency Arrangements, Referral Pathways and Resources
HD Specialists or Specialist Youth Advisor will undertake assessment of need, referring to Social Work ( Highland , Argyll & Bute ) for a statutory assessment when appropriate and signposting carers to the network of services within each local authority.
Standards
Support should be consistent with the Carers (Scotland) Act 2016

HSCPs should ensure that training & education is available to carers

Outcomes
Carers and their families are well connected  to support services and feel adequately supported throughout their experience
National Care Framework for Huntington's Disease

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