Support with employability when you need it

Examples of Support

Formal advice (advocacy, facilitation, mediation & legal) relating to: employment options, information on HD for employers, employment law and employment rights, changes to working patterns, workplace adaptations and equipment.

Key Services and People

Scottish Huntington’s Association Financial Wellbeing Service ( offering advice on money issues surrounding employment and link to employment advice services ). Alternative employment advice services are provided by Citizens’ Advice and ACAS .

HD Specialists & HD Clinic

Scottish Huntington’s Association Youth Project (SHAYP) / Specialist Youth Advisors

Advocacy Services ( Highland , Argyll & Bute )

Clinical psychology/Neuropsychology (through referral from GP or HD Clinical Lead )



Employment Lawyer (contact Scottish Huntington’s Association or Citizen’s Advice for initial assistance)

Healthy Working Lives

Occupational Health

Occupational Therapy ( Highland , Argyll & Bute )

Staff Associations

Trades Unions

Vocational Rehabilitation

Volunteering ( NHS Highland , Highland Council ,  Argyll & Bute Third Sector Interface , Highland Third Sector Interface )

Working Health Services Scotland

Integrated Multi Agency Arrangements, Referral Pathways and Resources

Referral to HD Specialist who will assess support required, either providing direct advice to client and/or employer, or referring to/ coordinating one or more of the key services identified for specialist advice

For symptomatic under 25 year olds, refer to HD Specialist or HD Clinical Lead who will assess support required before referring on to one or more of the key services identified for specialist advice and vocational rehabilitation


Referral Standards of service used


People with symptoms of HD and their families or carers are able to work in line with their abilities and choices, have good access to advice about employment rights and are well connected to employment support services.

National Care Framework for Huntington's Disease